One of the little things that we folks with MS have to deal with often is the residue of the minimal (or more) brain damage caused by the lesions and inflammation of the disease.
For me, it’s all about my boss-brain. Executive functions, they call them. I used to have them, once upon a time. Apparently it’s fairly common to have problems with them as MS progresses.
My poor friends and family have to put up with my whip fast mind-changing – I toss ideas through the air, get all excited about them, change my mind, and race off in the other direction. I seem incapable of choosing a route and following through, and the poor folks who listen to me are probably hurt and confused as I waver to and fro.
God love them, so far they have simply commented. I recently nearly lost a good friend this way, and it drew me up short. How to cope with my Anne of Green Gables-ish enthusiasms, which seem to take no one else into account? I must appear completely selfish as I toss myself here and there – thinking of moving here one day, changing my mind the next, planning a trip or an outing another time, rejecting it totally the next.
I’m working on being less reactive, but I do suspect most of it has to do with the holes in my brain. (Which I can never say without channelling my ex, who used to quote the following:
There Are Holes In The Sky, by Spike Milligan
There are holes in the sky
Where the rain gets in
But they’re ever so small
That’s why the rain is thin.)
My holes in my head aren’t so thin anymore. Things flash about in there and the boss brain is out to lunch or off playing a round of golf or perhaps shagging the secretary (cos God KNOWS I don’t have anyone writing down my decisions or ideas!).
I always liked the thought of a creative wander everywhere mind, but that’s when my boss was still about to rope it in when I needed to organize my thoughts or accomplish things or make decisions or think about what I want to say. Now it’s a bit too free-range for me. I really don’t want to spend the rest of my life alone, shouting WTF!!!, but I’m afraid now. If I get close to someone, how will the brain act? Will I end up hurting people all over again?
And given that MS is a chronic, progressive disease, wouldn’t it be better if I just hid myself away, said nothing, kept to myself, walls fully up, just so the laser beams sparking out of my damaged cortex won’t fry anyone?
It’s a conundrum. For the moment, trying yoga and meditation, CBT and DBT, self-regulation and prayer. And lots and lots of apologizing to those caught in my brainstorms.
Of course, on the bright side, maybe I’ll lose the ability to speak/type/communicate…but where’s the fun in that?
One of the great privileges of getting older is we are allowed to have these flights of fancy, and you more than anyone. Embrace it and don’t apologize to anyone.
Wait a minute. You have flaws, some of which are beyond your control, WTF what’s up with that?
Speaking on behalf of those of us who are pretty much perfect, that is obviously unacceptable. I have only known you for a very short time, but clearly, all of us, be we family, friends or acquaintances, should band
together and lock you in the attic.
Sure, creative people tend to be a tad off-centre, but that is no excuse. We all must conform. If you can’t say anything 100% acceptable to everyone, don’t say anything.
Some people may accuse me of hubris, but to quote one of our great philosophers, “Lord it’s hard to be humble when I keep getting better each day”.
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No decision should be made without a dram or two of Writer’s Tears. Your explaining things like this helps us, your loving friends, to be even more compassionate in understanding, or trying to understand some of what you are going through.
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