The occasional wallowing, or how I wish I could chat with Sophia Loren

I have a lot of friends who are dealing with chronic illness or the illness of loved ones or bereavement or even the loss of pets. So when I saw this article, it called to me: "The Other Side of Grief" by Whitney Akers. The article links to a group of stories about how people coped…

Moist

Words - I love them. I even love the great huge portmanteau words (a la Alice in Wonderland) that carry loads of meanings between their consonants. I am gently mocked by friends and stared at by strangers when my three-syllable ones tumble out instead of shorter, clearer phrases. It's my sloppy brain filing system. I reach…

On Royal Weddings, PDA, and the Preservation of Love

I'm not a royal fan, though I give the Queen all sorts of credit for serving her office with grace and charm throughout some tumultuous years. I've always been suspicious of inherited positions and wealth - it's so cynical of me because of course, I inherited privilege as well - a healthy upbringing, sort of,…

Oh, Mouse!

I've been reading a lot of research results lately and I'm starting to get disturbed. There are millions and millions of little mice going the way of all good research animals to help us figure out MS, Alzheimer's, Parkinson's, and lots and lots of other disease entities. I am grateful for their (unwilling) service. I…

Hanging out in a liminal space

I have a feeling of being in transition, of being in between the not anymore and the not yet. I've been chewing on it ever since I saw my dear friend incarcerated in his body from a stroke, and struggling in a nursing home. The push onto the threshold is also because this is my…

It’s Evening. . .

Of a foggy foggy day, filled with grey skies so low and looming that one could easily slip away in them, vanish like the ferry as it skims to and fro. The fog has finally cleared and the reflection of the lights on the water seems oddly bright. Even the ferry lights seem shinier than usual,…

On porn, or the decidedly awkward moments of writing about sex

As you may know, I have MS. As you also may know, I am writing a book about MS and relationships, particularly intimate relationships. Why? Well, they say, them as can't do , teach... Seriously, though, I started this project (to my children's everlasting squeamishness) when I was first diagnosed with MS. I am single,…

Well, F*** it all, anyway.

I'm in a mood. I get in a mood whenever my MS takes a little bit more of me away. When I'm IN that mood, the following things make me furious: Statements like, on the Shift.ms website: "MS doesn't mean giving up on your ambitions, just rethinking how to achieve them." HA! Statements like: "My…