Now is the Summer of our Discontent

Made impossible torment by this fog of humidity And all the clouds upon the horizon looming Lessen not the damp through lightning or storming Now our brows are laced with gobs of sweat Our pale-white arms hidden from the sun as we search for coolth And fierce horns presage the coming of ships Shrouded in…

Oh, Mouse!

I've been reading a lot of research results lately and I'm starting to get disturbed. There are millions and millions of little mice going the way of all good research animals to help us figure out MS, Alzheimer's, Parkinson's, and lots and lots of other disease entities. I am grateful for their (unwilling) service. I…

Hanging out in a liminal space

I have a feeling of being in transition, of being in between the not anymore and the not yet. I've been chewing on it ever since I saw my dear friend incarcerated in his body from a stroke, and struggling in a nursing home. The push onto the threshold is also because this is my…

Restless Legs cured?

Well, not the medical malady. More the moving all the time thing. My friends mock me for it, those who choose to stay put for years and years can't understand it, even the local landlords have taken to asking me prying questions about my moving history. It's true. Since I left my husband, I've moved…

On the Tragically Hip, terrible diagnoses, and the joy of embracing life

There was a moment at the end of last Friday's epic Tragically Hip concert when Gord Downie broke down in tears. No one made a comment. No one has commented since, as far as I can tell. But he was sobbing, his face spasmed in grief, his chest rising with deep, gut-wrenching sobs. It was…

On porn, or the decidedly awkward moments of writing about sex

As you may know, I have MS. As you also may know, I am writing a book about MS and relationships, particularly intimate relationships. Why? Well, they say, them as can't do , teach... Seriously, though, I started this project (to my children's everlasting squeamishness) when I was first diagnosed with MS. I am single,…

Well, F*** it all, anyway.

I'm in a mood. I get in a mood whenever my MS takes a little bit more of me away. When I'm IN that mood, the following things make me furious: Statements like, on the Shift.ms website: "MS doesn't mean giving up on your ambitions, just rethinking how to achieve them." HA! Statements like: "My…

Losing my boss

One of the little things that we folks with MS have to deal with often is the residue of the minimal (or more) brain damage caused by the lesions and inflammation of the disease. For me, it's all about my boss-brain. Executive functions, they call them. I used to have them, once upon a time.…

Connecting with your inner wild thing

Ever since I got this darn disease, I've been surrounded by people who want me to be careful, take it easy, look after myself, rest. I appreciate their looking out for me, and my friends have graciously supported me and saved me from errors, but it's the general run of noise from strangers that makes…

Connecting to the real writer’s life

Ach. I am fed up with myself. I've been a self-described writer for several years now and my publication list is just terrible. It all started out pretty marvy, with lots of articles published about my silly life, a story published here and there, some entries in various professional publications. Then I got lost in…